Monday, August 13, 2007

Exstrophy and Exotropia


Yesterday we saw Anara's Developmental Pediatrician, and she was amazed by Anara's progress and how fast she is catching up. She said that Anara is actually advanced, not delayed - so long 1st Steps. The only little thing she noticed was Anara's wandering right eye. I have noticed that Anara's eyes do not always seem to be looking the same direction. She thinks her exotropia is mild, but we will still follow-up with an opthamologist. Anara still has some feeding issues and will be seeing a speech therapist dealing specifically with feeding during her hospital stay.

You can almost tell the eyes are the tiniest bit off in this close-up

Speaking of hospital stays.... Anara's surgery is still set for Sept. 6th and she will most likely be hospitalized for 21 days if everything goes well (there is always the possibility for shorter or longer depending on healing). Anara will be in an external fixator instead of a body cast. I would not recommend googling that word because the pics. are disturbing and don't show exactly what Anara's will look like. Basically it will be an erector set looking thing around her pelvis to keep her hips immobilized and allow access to her incisions.

A baby playing with a baby playing with a baby

The girls have had a little cold the last week or so and Anara is still snotty. Yesterday she had a low-grade fever, but we think it is related to teething. Anara is finally cutting her top 1-year molars. I thought that Violet was finished with her 2-year molars but yesterday she kept putting her finger in her mouth and complaining about her tooth hurting. Anara's MD looked in her mouth and said that her upper 2 - year molar has an extra little bump on the tooth. So, instead of the molar having four peaks (for lack of a better word) she has 5 or 6. Also, Vi's 6-year molar was peeking through the gum on that side.

Daddy's IU flip-flops, a pacifier, and teddy's shades

Last Wednesday we met some friends (Billmeier Family Blog to the right) at the Indiana State Fair for the hot air balloon launch. We woke the girls up and left the house at 6:00am. The girls enjoyed watching the giant balloons and the "fire" in them. Here are some pictures from State Fair trip #1.

Daddy and Vi excited about balloons

Anara excited about balloons

Our family excited about balloons

Watching the launch

Balloon Skyline

Violet and Keith cooling down

A little bit afraid of the pony ride. Vi said, "That's OK though, the man said that happens sometimes."

Saturday we went to the fair with my mom, brothers, and Nate's parents. It was a little warm and a bit crowded, but we still were able to make our way around.

Anara and Vi watching the little piggies.

Napping in an air conditioned building

Cooling off in the water fountain

4 comments:

Anonymous said...

Love it! Thanks for the update and all the adorable pics!

Unknown said...

I never did get to the State Fair... I hope you ate some fried twinkies/snickers/oreos for me! And seriously, I don't know where you found the "Chocolate Rain" video, but that was truly hilarious. I still can't believe how long it runs!

Anonymous said...

Anara looks amazing! It's great how much weight she seems to have put on and how happy she looks. Such a difference from the first pics you guys posted of her.

Unknown said...

i agree Jenny she is great