We are all set to be discharged between 11:00 and 12:30 tomorrow. Of course we know that there is always the possibility for delay but we are praying for no surprises and for Anara to be healthy and able to be cared for at home.
We have one home health care business for our GI supplies, another company for our GU supplies, and of course the ambulance agency to provide transport to and from the hospital. It will be an interesting next few weeks. I can't wait to get a date for the removal of the hardware and tubes. It will be considered another surgery - Anara will anesthetized and while she is under we will practice catheterizing her through her channel. They will also remove the fixator, the pins, ureteral stents, and the tubes.
Anara hasn't needed any morphine or Valium for a couple days. We have been able to manage her pain with Tylenol with codeine and Ditropan (to manage bladder spasms). She has been eating great since we put in the G-tube. It's very Anara-ish to starve herself into a G-tube and then decide to eat on her own after we take it to the next level. She is still pretty happy. I would be itchy, uncomfortable, and grumpy after laying in the same position for 3 weeks, but she is still fairly entertained. I am hoping that the change in scenery won't make her more frustrated.
I can't think of anything else to post. Is there anything anyone is dying to know??
8 comments:
Not to be morbid or weird, but I wonder if being in an orphanage kind of "prepared" her for his. Surely for those first few months she just had to go with what others decided--in the crib, out of the crib. Does that make sense? To her being confined now is probably WAY easier than then b/c she is surrounded by her family and people who love her so very much. Does that make sense?
Oh, and I'm so very glad you are coming home. Please call for anything--just to talk, vent, whatever. I'm actually SICK this time around, so I'm especially happy to sit down and chat on the phone for a bit. :)
Yeah! Happy news! So glad you all are finally coming home. Doesn't Anara qualify for a home health nurse to help you out for the first few days? I'm sure everything will go fine, it just seems to me that would make for an easier transition.
Amanda, i'm so glad things seem to be going so well for Anara. I have been keeping up on your posts and thinking and praying for Anara and your family. Prayers are with you as you head home tom.
What's the latest on her left leg movement?
Just want to thank you for keeping us posted on Anara's progress. We're happy that she is going to get to go home. Praying that it will be a smooth transition for Anara and for you. (or as smooth as possible in this situation) Also praying for you and Nathan and whoever will be assisting you. (Grandma Jan or Grandma Beth perhaps?) Praying that Violet will be good therapy for Anara as well.
I am so happy for you guys! That feeling of smelling the sweet air of your own home and not the sterile smell of a hospital! I know that feeling!
Love you all,
Danielle
This is a huge step in this long process - another milestone! Praying for you as you get used to the new routine.
Shelley V.
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