8 - 6 = 2

Only two tubes left - the suprapubic and the g-tube. The suprapubic should come out after Christmas and who knows when the g-tube will come out - that is up to Anara. She is not really interested in food and still depends on the tube for most of her calories. Yesterday we went to the urology clinic to have the one remaining ureteral stent removed. She seems to be draining and holding urine well between catheterizing.

Violet had an appointment with the pulmonologist yesterday and she timed her current illness perfectly. She performed for the Dr. and ended up having her oxygen level checked and we came home on prednisone. I was a little disappointed that she has to have oral steroids and tried to convince her MD otherwise. This just seemed like normal Violet cold to us. Actually it probably is normal Violet sickness but we have never had a pulmonology appointment coincide with it.

Last Friday night we decided to take Anara on her 1st non-hospital outing. We went downtown to see the lights and walk around. She loved being out riding in the stroller and car, and it was fun to have her out and feel like an almost normal family again.

1st car seat ride P.S. (post surgery)

1st restaurant P.S.

1 second the hat was left on

1st Christmas light show ever